We are going home! Just 6 days post-op, Ramona is doing great and we have been discharged! She definitely still has some major healing and r...

Hi there, I just wanted to report that Ramona is doing well. Her surgery on Thursday went as well at we could have hoped. They were able to ...

Just a quick update to say that Ramona is slated to have her myectomy at 8:00 am tomorrow (September 5). We'd appreciate prayer for all ...

We have had a sudden, surprising change of plans. (Apparently that is just the way we do things.)  During Ramona's transplant evaluation...

  It's crazy to think we've been here almost 4 weeks so far. We are just plugging along, with not much to report. I’ll list a few hi...

  Tie-dye projects As of Friday night, Ramona is officially on the 1A (highest priority) transplant list. There’s not much to update on othe...

Well, we thought we had a plan for Ramona. Once her test results were finalized and her transplant team had a chance to thoroughly review he...

Sorry for the radio silence the last last few weeks, but there hadn't been any new news to share. We spent the first half of May finishi...

  Sister snuggles! Ramona had her procedure/testing yesterday morning. She had to stay flat on her back for four hours following the cardiac...

  Crazy cotton candy after her appointment on Monday.  After having to reschedule a couple of times for various reasons, we've got a bus...

We met with a doctor in Chicago today, and, it turns out, she was one of the doctors who cared for Ramona when she was admitted at Lurie as ...