I realized I didn't mention this in the last update, but we did get an AED (Automated External Defibrillator) for this kid. The insurance didn't pan out, but the Children's Cardiomyopathy Foundation gave us some resources that helped us save hundreds of dollars on the machine and pediatric pads. (They all come equipped for adults, so you have to get the pediatric pads separately.) It still wasn't pocket change, of course, but it was much cheaper than we had expected. Just another way this girl has been provided for and cared for. 💓
The whole thing fits in the backpack we formerly used as a diaper bag, so it's easy to take along with us, and we don't leave home without it. I pray that it can just stay in that backpack forever and that we never have to use it.
Side note - Did you see that picture up there? The one of that tall girl with long hair that you probably hardly recognize? WHERE DID MY SQUISHY BABY GO?
Anyway, not much else to report. Both girls had a run in with some kind of virus in January, but, thankfully, Ramona handled it well (no puking, drank lots of water, and fever wasn't too high) and it was pretty uneventful. Big sister did throw up a few times, though, but even then she found time between puking on me to tell me that my nose hairs were gross...as if that were currently the grossest thing going on in our house. 🙄😂 I don't know how I ended up with such funny kids, but they sure keep our home light-hearted and full of laughter!
|Little sis making popcorn, and big sis pretending|
to be a generic celebrity who is gracious enough
to pose for pictures with her adoring fans.
|Posing every time I try to take a picture. 😂|
|Swimming with Mimi.|
She made an endless loop climbing the ladder and jumping
in the pool the entire time we were swimming.
|$1 per game bowling = hours of family fun!|
|More posing in TINY BOWLING SHOES.|
And that's the story of how I died.
Thanks for praying for our sweet girl and her special heart!
But God demonstrates his own love for us in this:
While we were still sinners, Christ died for us.
- Romans 5:8