Friday, June 15, 2018

One Year Ago

One year ago today we took Ramona to see a Cardiologist for the very first time. We expected to hear that her heart murmur was just a harmless little thing that she would outgrow, but instead we heard about irreparable muscle thickness, beta blockers, and heart transplants.

It seems like so long ago. On one hand, it's been a long, hard, tiring year. But, on the other hand, it's also been so much better than we could have hoped for. Mixed in with the scary, exhausting, and heartbreaking days have been many sweet, fun, and joyful ones we didn't expect to have. We count it a miracle that we have so many bright days and good memories to look back on from a year that could have been so much worse.
June 15, 2017
The day she was diagnosed and her
first night spent in the hospital.
We continue to pray every day for her precious heart to be healed, and we give thanks for each day that we have together. We know that God can heal her. We know that, whether He heals her or not, He is good.

Thank you, friends, for continuing to pray for our girl! Here are a song and poem that have been close to my heart. May they reiterate and refresh your hope as they have mine. 💗

"I Will Not"

I will not be discouraged,
Though many trials come and go.
I cannot see what’s coming next,
But here is what I know:

My Savior King goes with me,
Through every winding way.
Through every hill and valley,
He is faithful every day.

I will not be defeated,
When woeful forces pry,
And try to steal my peace, my joy,
And distract my weary eye.

Though I waver like the seasons,
My savior stays the same.
He holds my shoulders steady,
He gently calls my name.

I will not be downhearted,
When fear pounds at my door.
When worry pours down on my head,
His grace pours even more.

I didn’t earn His favor,
His kind and calming hand.
Yet, he comforts me and leads me;
He says, “Everything is planned.”

I will not be found hopeless,
When life is different than I thought,
When sickness, pain, uncertainty,
May seem to be my lot.

Though I may fall, or fear, or mourn,
That’s not how I’m defined.
Every time I start to slip,
God says, “Take heart, you’re mine.”

I will not be overtaken,
Though my journey may be long.
He hears me every time I call
When days and nights drag on.

My mighty God draws near to me,
He draws me to his chest.
When I feel I can’t go on,
He beckons me to rest.

No, I will not be discouraged,
But don’t think that’s due to me.
I’d never make it on my own,
My Savior carries me.

His patient love, renewing hope,
He meets me where I stand.
How can I be discouraged,
When my future’s in His hand?

So we fix our eyes not on what is seen, 
but on what is unseen, 
since what is seen is temporary, 
but what is unseen is eternal.
2 Corinthians 4:18

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Test Results & Next Steps

  Sister snuggles! Ramona had her procedure/testing yesterday morning. She had to stay flat on her back for four hours following the cardiac...