Saturday, June 1, 2024

Follow-up this month



Sorry for the radio silence the last last few weeks, but there hadn't been any new news to share. We spent the first half of May finishing up appointments with various specialties, and then we've been waiting to hear what the plan would be moving forward. 

Our cardiologist at Lurie's called yesterday, and, of course, it was when I was in the midst of a self-checkout with children melting down all around me. 🤣 But anyway, she said she wants us to bring Ramona up for a follow-up appointment on June 11. Ramona will have her usual echo and ekg, and it sounds like we'll sort of get the final input from some of the doctors on what they think we should do. 

I asked if we should plan/pack as if we'll be there a while, and, at the moment, it sounds like we should expect an outpatient visit. It also sounds like they might be leaning toward possibly listing her at a lower status with her waiting at home at least to begin with, but we really don't know yet.  Everything is so uncertain and flip-floppy, so  we will continue to hold our "plans" loosely and see how the chips fall. Because I am who I am, I will be doing some excessive packing and prep work at home before the 11th, just in case. :)

I think that's it for now. Ramona continues to be in good spirits and is still her sweet, helpful, and hilarious self. We continue to pray for the doctors to have wisdom in what is the best plan for her, for us to steward our family well, and for healing for her heart. ❤️


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Follow-up this month

Sorry for the radio silence the last last few weeks, but there hadn't been any new news to share. We spent the first half of May finishi...